Nereg Northeast Regional Epilepsy Group

 Who we are




MISSION

Epilepsy Life Links provides a comprehensive array of supports and life-improvement opportunities for persons diagnosed with epilepsy and seizure disorders. The aim of our epilepsy advocacy group is to improve the quality of life and care for people of all ages who suffer epileptic seizures and associated symptoms and complications of epilepsy. Our programs focus on the physical and mental well-being of persons with epilepsy by promoting education, accessibility to health care, peer communication, and a sense of community. We developed these programs with the epilepsy patient in mind, and are accessible to caregivers and healthcare providers.

VISION
To cultivate a comprehensive support system for children and adults with all types of epilepsy diagnoses and symptoms that arise as a consequence through collaboration with a network of advocacy groups, regionally, nationally, and internationally. Our collective goal will be to assist epilepsy patients everywhere in becoming fully woven into the fabric of society.

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  Event & News

Sharons Ride Run Walk
Annual Northeast Regional Epilepsy Group Conference

October 29, 2016

Simultaneous all-day conferences on adult and childhood epilepsy and psychogenic non epileptic seizures taught by epileptologists, neurologists, neurosurgeons, neuropsychologists, social workers, registered dieticians, and nurses who specialize in epilepsy and seizures.

Audience: patients, caretakers and professionals who work with them

Epilepsy Book Release
Book release: In our own owrds

Congratulations to Dr. Lorna Myers and her co-author, Mary Martiros for publishing a new book called In Our Own Words: Stories of those living with, learning from and overcoming the challenges of psychogenic non-epileptic seizures (PNES)

This book is a compilation of testimonials given by people from across the US and abroad about their experiences of living with psychogenic non-epileptic seizures (PNES).
Annual Nereg Conference
Bike-a-Thon

May 1, 2016
Time: 8:15AM


Team EPILEPSY FREE rides on the 5-borough Bike-a-Thon to raise awareness on epilepsy and seizure disorders and funds for EPILEPSY FREE. Stay tuned for pictures after the event.